One Rare Boy - Women's Tee
Thank you for supporting our One Rare Boy fundraising efforts. Together, let's make sure Eli knows he is not alone in this journey.
About this tee:
Semi-fitted women's style t-shirt. Features a lightweight 4.2 oz., 100% combed and ringspun cotton fabric. Light silver fabric. If you prefer a comfy, loose fit and/or like extra room through the shoulders, bust or waist, we do recommend ordering up a size. (So instead of a medium, order a large.)
Order by August 15th to receive before Ironman Wisconsin.
How will your t-shirt purchase makes a difference?
Proceeds from your purchase go directly to research and working towards a cure for FOP. Researchers around the world are working tirelessly to find a treatment, and ultimately a cure. They have made significant progress, but funding opportunities are scarce for diseases that affect so few. 75% of FOP research funds are raised by the families and friends of people with FOP. And now that we've discovered we are just that, it's time to get to work. Even the smallest amount - like your purchase of this t-shirt - has an impact. Eli's mobility is already affected by FOP, and a treatment cannot come soon enough.
Looking for more ways to help?
Share this fundraiser far and wide. Awareness is critical so children born with FOP can receive the specialized care they need. Also, please send Eli some love; this is a tough road to travel, but your positive energy can make the journey a little smoother.
Learn more at www.onerareboy.com.